New Delhi, March 05, 2020: With nearly two lakh registered cases, India is estimated to have the second-highest number of patients with hemophilia, a lifelong bleeding disorder that prevents blood from clotting. Hemophilia is usually inherited and about one in every 5,000 males is born with the disorder.
Though recently the Govt. Of India recognized Hemophilia under RPWD act in 2016, little has been done to sensitize people and provide basic medication. Due to the absence of proper diagnostic facilities in the remote areas, it is estimated that around 80 per cent of the hemophilia cases go undiagnosed.
The monthly cost of the treatment can easily go above Rs. 25000 per bleed, which is extremely difficult for the majority of people in India to pay. There is a need for diagnostic centres that can help first of all in diagnosis and later make people aware of the seriousness of the health disorder as Indians with hemophilia have a high rate of complications and disabilities.
What HFI seeks from the Govt.?
Our primary concerns of immediate discourse are;
- Further improvement in access to treatment and care
- Uniform budgeting for CFC procurement to realize our vision of “One Country One Treatment”
- Prophylaxis for children
- Diagnostic facilities at government hospitals
In the long run, we are aiming for 1 HCCC every state, 1 HTC in each district, training of HCPs, Home Therapy, CD/PND, Benchmark Disability and Rehabilitation.
If this interests you, we can connect you with Mr SS Roychoudhury, CEO, HFI and Dr. Tulika Seth, AIIMS.
Do let us know your thoughts.
Corporate Comm India(CCI NewsWire)
